Sunday, June 14, 2009

class action lawsuit/minocycline side effects

First I just would like to thank you for stopping by. This is about my wonderful daughter and the nightmare of Minocycline. Crystal is 23 years old and started taking Minocycline (50mg) for acne. She took it for about 2 months and it was not doing anything for the problem. The Doctor put her on 100mg once a day. After about a week or so we started to see some changes in her. Before all of this Crystal has never taken drugs or never drank alcohol So lets rule that out right away.

The changes we saw in her were not good. She started staying in her room a lot. She was looking for a job but was having a hard time like so many other people and just could not find one. When she stayed in her room she would lock the door and put things to block it closed.



Not to go into a long story these are a few of the other things that happened to her.

disorientation, hallucinations, impaired memory, lack of drive, nervousness, sleeplessness, stomach upset, confusion, mood and mental changes, dizziness, agitation, hostility, confusion, headache, muscle pain, blurred vision, catatonic and depersonalized symptoms, there is more but we will get back to that later.



If you or someone you know has or had any of this happen to them please let me know. You see there is nothing told to you that this minocycline can cause these side effects. Like any Mom or Dad you would never let any of your loved ones take this if they knew the truth about what it can do to you.



When I started doing my own reading that is when I found out the danger of this drug and what the outer shell is made of.



1) Shellac

2) Sodium Lauryl Sulfate

3) Dehydrated Alcohol

4) Butyl Alcohol

5) Isopropyl Alcohol

6) Propylene Glycol

7) Strong Ammonia

8) Black Iron Oxide

9) Titanium Dioxide

10) FD&C Red #3 Food Coloring

11) FD&C Yellow # 6 Sunset Yellow (any product that contains fd&c yellow #6 is to be taken off shelves by 2008-2010)

12) D&C Red #33

13) Red Iron Oxide

14) Gelatio-collagan



I will be adding more to this blog, I am very new at this and I have no idea if I am doing it right.

Soon I will write down the whole story of my daughter and how the hospital pushed her aside (maybe because she had no Insurance) and used the Baker Act and had her put in a mental hospital for 4 days. That is another story and what can happen to you if you use Minocycline!



Thank you very much for stopping by.

Momonamission(Janet)

30 comments:

  1. I know the feeling....That sounds pretty much like me, except ten years down the road and a lot worse before I figured it out. It's completely terrifying in a lot of different ways. Just something to talk to your primary care physician about... ask specifically for her to be checked for high candida levels in her blood. Apparently long use of antibiotics can cause that to occur, and basically, that's a systemic fungal infection that can cause a lot of things to happen. Doctors don't usually routinely check for it in blood tests though, so you have to ask, as obviously, many of them overlook this as a cause, because it took over 10 years to put two and two together about that aspect of it. I'm starting to learn that it isn't just one source of action to take in order to get back on track. It's many. Don't let her wait until her body is degenerated more like mine is. Let me know about that suit, because I'm all in. This has destroyed my life and made every day excruciatingly uncomfortable. To make matters worse, every day is unpredictable, because sometimes I can think straight, and sometimes I just have to put up with people looking at me like I'm crazy or shut myself up in a room somewhere. It's hard to function, have a relationship, form normal friendships, complete everyday tasks, and have a general appreciation for life, and yes, I believe now that minocyline is the reason for all of the things that you listed above happening to me. There should be some form of compensation for it, because all we wanted was clear skin and to have a minor infection treated with a "mild" form of Accutane. Yea right...mild my *ss. There's absolutely nothing mild about my throbbing joints and neurological degeneration...nothing.

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  2. My daughter had minocycline induced lupus. Hospitalized twice for pain and swelling. High liver enzymes. Dealt with doctors who had no clue. Finally went to Columbia Presbyterian in Manhattan and found a doctor who saved my child. This nightmare lasted about 3 years. Many children are being hurt by this drug and we have to do something about it.
    I am in for a class action lawsuit. Lets do it!

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  3. Hi Maria
    My daughter also developed drug induced lupus in Dec 2010
    Can u please tell me what your doctor did
    Thanks
    M

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    1. Hi Missy,
      His name is Dr Andrew Eichenfield.212-305-9304. He put her on a medrol regiment. He is amazing and you need to see him if your daughter is still suffering. This craziness started in October 2009 at age 16. My daughter is now 20 yrs old and doing great but still goes for bloodwork every 6 months. This doctor, through his research on this drug, minocycline, feels it has something to do with girls and their hormones resulting in the lupus symptoms.
      Let me know how it goes and I wish you the best.
      Maria

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  4. This would be my great niece who I raised for 13 years also. She took it in 1996 and within 5 weeks was blind and in the hospital at OHSU in Portland Oregon. She is some better, but still having residual problems. Horrible stuff with little literature on it back there. Her doctor and phamacist had no clue either. Let me know if you get a class action going. Our lawyer dropped us years ago.

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    1. Thank you Janet (momonamission) for starting this. Hopefully others find this blog and join so we can stop this drug from hurting others. Welcome Joyce... so sorry to hear what happened to your great niece.

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  5. I was on Minocycline from Jan 2011-July/Aug 2011 when I stopped on my own. I never connected my ailments to the drug I got from my dermatologist. I started having bad joint pain in my left elbow, then to my left wrist, then same in right arm. I went to urgent care when they suggested R.A. I went to the hospital a wk later because the pain traceled to my legs and ankles and became more excruciating. They also suggested R.A. Over months as the pain progressed, I became depressed, cried a lot more, was almost confined to the couch because it hurt too bad to walk, fever, dizzines, forgetfulness, extreme fatigue, swollen fingers and toes, loss of appetite, discoloration, etc. I started to believe I was dying because I felt so opposite of how I always felt and was always in pain. I had been to urgent care, er, my physician, rheumologist, internal diease. I have had all kinds of blood work and tests and still no answers. I stopped taking minocycline because drs had me on other meds for pain and inflammation. I wasn't consistent with them because I didn't like how they made me feel either. Little by little I started to feel the excruciating pain disappearing and family noticed color back into my skin. As soon as I felt a little more like myself I went back to the dermatologist to resume my regime. Again I was given minocycline. I took the dose next day and within min felt nauseated. I still didn't connect until I felt pain in my elbow again. I don't know what hit but I thought "could it be?" I looked up side effects of minocycline and was shocked that just about everything I experienced was on the list and even things I had weren't. I stopped taking it completely. I called all the specialists and drs I've seen and my dermatologist to tell them that I believed my ailments were caused by minocycline and all they said was they would note it. It took a few weeks to feel a little like I did before that dermatologist visit. Since I've stopped using it I do feel better but I'm not completely as I was. I still every now and then feel slight pain in my elbows, my fingers still swell, I seem to be more tired than before taking those meds, and most painful one is my fingertips get numb and turn whitish (not specified on list that i have found but could be nerve damage). I've actually have this problem worse in winter and this last week has been the worst. I tried contacting lawyers for a lawsuit but no one wants to take it. I don't understand how others can go after drug companies but I'm having a problem. I'm not the same as I was before I used it and now have long-term effects of it.

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  6. Dear Diana,
    Now we have 6. Hope others join this blog. So sorry to hear another heartbreaking story.
    Maria

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  7. I would like to join this lawsuit. I took minocycline for a month or so in 2008 and immediately afterwards my health began deteriorating. I developed pain, strange visibly inflamed lesions on my skin, and a condition that has subsequently been referred to by different physicians as either drug-induced-lupus-like syndrome, or crohn's disease+ psoriasis, all autoimmune conditions directly related to taking this medication. please contact me, daveamar@mail.com as i would like to join this lawsuit.

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  8. My name is Destiny and i am seventeen. I was on Solodyn for my acne for almost a year, 60 mg. I had headaches frequently and even passed out a couple of times, but the doctor told us it was probably not the medication, and to continue taking it because it seemed to be working. The dizziness and the fainting got worse. I went to the eye doctor and they informed me after a few tests that I have intercranial hyptertension, and I have lost 40% of my peripheral vision in six months. Since I was diagnosed I've had to go through an MRI and plan to have a spinal tap next week, both very expensive procedures. I would like to join this lawsuit. You can contact me at icygurl101@gmail.com

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  9. Hello. My name is Megan I am 22 years old I was taking minocycline for one year. First I took solody 80mg once per day for 2 months. My insurance no longer covered it so my dermatologist switched to the generic which was minocycline 100mg twice per day. I started getting headached everyday and thought it was just because I needed glasses. To make a long story short I was just (2 days ago) diagnosed with psuedotumor ceribril. I had bloodwork, a CT scan, MRI and spinal tap. I just started taking 1000mg/day of diamox. Doctors believe it is from the minocycline. I would love to join this lawsuit because this drug should not be on the market. I have read way to many stories about this medication! Please contact me ciprianomegan@yahoo.com. Thanks!

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  10. OMG is anyone still considering or have a class action lawsuit about this. I want in. I was taking minocycline for only 2 weeks, I started with a horrible rash, then went into traveling debilitating joint pain. It was so bad I missed almost a month of work, my dr's had no clue, had over $30,000 worth of bloodwork done, no one would help acted like they didn't care and that I had lupus and needed to deal with it. Finally I went to pharmacy and was telling pharmacist about it she said let me get the sheet that comes with the meds, she told me about drug induced lupus finally I got into an RA specialist and she tested me for lupus and drug induced and it came back as drug induced. This med is nothing to play around with it got so bad in that month that I could not walk, I could not breathe right, I had claw hands for weeks and could not move my fingers, I could not drive, and to a lot of people that sad mild, but I tell you I have a Extremely high pain tollerance and have had 2 c-sections and nothing has touched the pain I felt during that month, went to ER one night and they turned me away saying there was nothing they could do for me other than prednisone, which I was already on at that point. I was taking percocets like candy and nothing helped, NOTHING. Someone needs to take this med off of the market NOW!!!! If someone has any information about how I can become involved in this lawsuit please contact me at themcdaniels13@gmail.com and I am so SORRY all of you had similar experiences. I look forward to speaking with someone about this soon. Also all of this just happened over the past month, It started 3/7/13. Good luck to you all.

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  12. My son developed ulcerative colitis after taking minocycline. He started taking the drug at age 15 almost 16 and by the time he was 20, he was in for his third colonoscopy. His life then consisted of steroid enemas, and oral meds to control his colitis.

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  13. I started to develope severe cystic acne around 19/20yrs old and became tired of it. At 21yrs old I finally seen a doctor for it and of couse was prescribed minocycline. The doctor said that I should be fine taking it because the benefits would outweigh the side effects. Well I had to stop taking the medicine because now I am currently experiencing bouts of numbess all over my entire body and I did have a yeast infection. I have a mild form of depression and the drug has caused me to become depressed than I would never expected; I was even having increased suicidal thoughts, it was that bad. I now also have been becoming more agrivated, and anxious and isolate myself more since it's made my social anxiety symptoms worse. Overall, the drug has made problems that I already have worse and seems to be giving me more problems. I've even been having the most terrifying nightmares; ones that I hope will go away. Minocycline should not be on the shelves like the rest of the drugs from various drug companies that are ruining innocent people, which have and more than likely still need suing. I'm all for joining this lawsuit against another dangerous drug. My email is blackenedpirate19@yahoo.com. I hope I don't have more problems with this drug but will write about anymore on here if I do.

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  14. I'm pretty darn sure minocycline triggered my two rounds of bells palsy, candida, celiac disease, and slew of food intolerances. I'm interested in where this goes.

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  15. I took minocycline for ten months and when I was on it I developed photoopsia, confusion, I felt very 'out of it', numbness in the right side of my face, pain on the bridge of my nose. Most of the problems I developed on the drug were cognitive problems. I had vision changes and mental changes and developed chronic pain. I took minocycline in 2007 and I still have many of these problems but no diagnosis. The chronic pain was in my neck for many years but is now more in my eyes than my neck. Anyone experience anything similar? Help.

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    1. I recommend you go and get checked out. I had some of the same symptoms before being diagnosed with idiopathic intracranial hypertension from minocycline.

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  16. Hi,

    How many are in the class action? I have been trying since 2008 to make something like this happen. I took it for 2 weeks anf developed intracranial hypertension. I know others who have permanent diabilities because of this drug causing this condition.



    How do you join the process? What attorney is in charge?

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  17. I'm in too if this is still something that is up and running

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  18. `My daughter who is now 16 was on Minocycline for over 1 year. She has POTS we assumed her symptoms were worsening because of her Pots. She was diagnosed last week with Medication induced Lupas.. If there is a lawsuit I want in.

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  19. I have tried emailing a couple of these attys online and haven't gotten any type of response for some reason....if there was a way we could direct them to this thread and others, they might see the goldmine they could be sitting on and they might do something!

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  20. My mother in law was recently diagnose with liver cirrhosis after taking Minocycline. She was taking it for several years on & off but the side effects of this drug is devastating. She no longer is able to work and has to been see a doctor weekly. If anyone knows of a class action suit please email me any information. My email- shorty8532@msn.com. Thank you

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  21. My 22 year old son was on this drug about 4 years. He has been fighting similar symptoms as described in this blog. Finally discovered it was Minocycline after countless blood tests and liver biopsy. His use of this drug caused liver damage and he will be getting blood test to see how the healing of the liver is progressing. Would be interested in further discussion of a class action lawsuit.
    Parents should be concerned when considering this drug for acne.

    His symptoms:
    Fatigue
    Joint pain
    muscle pain
    high liver enzymes
    nose bleeds
    fever pain
    extreme head aches
    abdominal pain
    weight loss

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  22. Hi. My dad had what his derm called barbers itch infection. he prescribed this drug, minoclycline. he took it about 2 weeks. My dad experienced severe nausea, vomiting, fatigue and just general ill feeling. he also complained of kidney pain while taking it. Anyway, he is 81 years old, and has been declining since. he has joint pain, intermittent swelling of hands, and feet, constipation, fatigue, shortness of breath upon exertion. His hemoglobin has been decreasing and his ferritin levels are extremely high. he also has a sed rate of 116 which is extreme! Sadly to say, he is going to a hematologist now. I'm wondering if this drug made him decline like this. He was healthy except for the barbers itch last December, which was just itchy and then all of the sudden he's in a life threatening mode.

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  23. My son's sight was effected by this medication. We were in and out of the specialist office for about a year, this was 2 years ago. If effected his optic nerve which did heal thank goodness but his sight will never be 20/20 again. Massive headaches as soon as he told me his symptoms I said quit taking it!!

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  24. After 7 doctors in 3 states my daughter was diagnosed with pharmacological induced hepatitis. The treatment is the regimen that they use for Lupus.

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    1. heather11028 can you tell me what your daughter's symptoms are? I think I may have Lupus-like symptoms....getting a physician to understand will be so difficult...

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  25. I took Minocycline for years - 10+? I never had an side effects until 5 1/2 years ago when I woke up one morning dizzy. The dizziness would not go away and I waited 7 weeks to see an ENT doctor. They sent me to vestibular therapy. Several weeks after the dizziness began my sister looked at me and said "why are your ears blue?" I called my ENT and she sent me to the E.R. They could find no reason, my oxygen levels were fine so they sent me home. The whites of my eyes, my finger and toenails, gums, teeth and inside my ears are stained blue. I finally went to another city to have balance testing done which basically said that my left inner ear was completely damaged and no longer worked. I had so much blood work done I was tested for silver poisoning, arsenic, you name it all results were normal. I now know that the dizziness and the blue discoloration were caused by Minocycline. This information regarding Minocycline wasn't available five years ago. I continue to struggle with vertigo and take nortriptyline daily. I have to fly in late September and I am terrified. Even changes in weather, pressure affect how I feel. This has changed my life and I would not wish this on my worst enemy.

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